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Familial Pulmonary Fibrosis
National Jewish Medical Center — Information on Familial Pulmonary Fibrosis, a case of pulmonary fibrosis that occurs in members of the same family. When two or more members within the same family have Idiopathic Pulmonary Fibrosis (IPF) or any other form of Idiopathic ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Causes
Coalition for Pulmonary Fibrosis — Idiopathic pulmonary fibrosis (IPF) is a progressive and generally fatal disease characterized by scarring of the lungs that thickens the lining of the lungs, causing an irreversible loss of the tissue's ability to transport oxygen. IPF ...More…
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Pulmonary Fibrosis Foundation Home Page
Providing educational materials to the medical and lay communities. Obtaining Congressional Support to increase funding of the NIH to find a cure for Pulmonary Fibrosis. Convincing the drug companies to initiate additional studies to find an ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Support Groups
Coalition for Pulmonary Fibrosis — Caring for someone who has a debilitating illness can be both physically and emotionally demanding. You are doing your best to ensure that your loved one gets the best possible care-staying informed about potential treatment options and doing all ...More…
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Coalition for Pulmonary Fibrosis (CPF)
Coalition for Pulmonary Fibrosis — This glossary may be useful to you as you learn more about IPF. Very small air sacs found in the lungs. Click here to see how the alveolar tissue changes with IPF. Experimental medications used to suppress the scarring process associated with ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Clinical Trials
Coalition for Pulmonary Fibrosis — The primary research challenge is that current investigational therapies are widely considered to be treatment to alleviate symptoms of IPF or to slow the natural, unrelenting progression of the disease, thereby extending survival. No current ...More…
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"Pulmonary Fibrosis"
Clinical Trials — A Pilot Study of Aerosol Interferon-Gamma for Treatment of Idiopathic Pulmonary Fibrosis Oral Pirfenidone for the Pulmonary Fibrosis of Hermansky-Pudlak Syndrome Albinism; Inborn Errors of Metabolism; Oculocutaneous Albinism; Platelet Storage ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Treatment
Coalition for Pulmonary Fibrosis — Pulmonary Rehabilitation and Oxygen Management for the IPF Patient For the idiopathic pulmonary fibrosis (IPF) patient, managing symptoms of respiratory distress can make even the simplest activities of daily living a challenge. Not only does IPF ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Treatments
Coalition for Pulmonary Fibrosis — What Every Patient with Idiopathic Pulmonary Fibrosis (IPF) Should Know Approximately 83,000 Americans are living with idiopathic pulmonary fibrosis (IPF), and more than 31,000 new cases develop each year. This debilitating condition involves ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Diagnosed
Coalition for Pulmonary Fibrosis — Because patients with PF experience symptoms and also have an underlying pattern of scarring similar to those of other lung disorders, PF can be difficult to diagnose. In fact, it was not until 2000 that PF was classified as a distinct clinical ...More…
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Coalition for Pulmonary Fibrosis (CPF) - Information
Coalition for Pulmonary Fibrosis — Does the CPF provide information regarding PF specialists for initial treatment or second opinions? What types of test will my doctor administer to determine if I have IPF? Where do I turn if I have questions about these trials or want to be ...More…
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What Is Idiopathic Pulmonary Fibrosis?
Heart & Blood Institute — Pulmonary (PULL-mun-ary) fibrosis is a condition in which tissue deep in your lungs becomes thick and stiff, or scarred, over time. DCI Home: Lung Diseases: Idiopathic Pulmonary Fibrosis: What Is ... Pulmonary (PULL-mun-ary) fibrosis is a ...More…